DMD is a genetic disorder characterized by progressive muscle degeneration. It primarily affects boys, most of whom are wheelchair-bound by age 12. Many don't survive past their mid-twenties. Duchenne affects 300,000 boys worldwide; 20,000 children in the United States alone. These children are robbed of their childhood as they can't run and play. The simplest of movements is painful.
As you can probably imagine it takes millions of dollars to find a cure. With your help, JAR of Hope supports a team of research scientists and doctors dedicated to eliminating Duchenne. We also provide support for these boys and their families.
For families like ours, every day and every dollar counts. With organized fundraising events and support from you, we can continue our mission and make the dream to find a cure a reality. Please check our website for events and updates from our researchers.
Without a cure, Jamesy's body continues to waste away; by 12 he will be in a wheelchair, by 15 he will be a quadriplegic, by 18 he will not be able to breathe on his own, he will live on a ventilator until he succumbs to the disease. The only way this beats him is if we fail him.
Our mission is to find a cure for Duchenne muscular dystrophy.
"Together, we can find a cure."